PinnedAfter taking a nutraceutical called Vedicinals for four months, the oxygen returning to my heart…My specialist is now making this hard-to-get blood test available for long covid NHS patients and private patients for £48!Nov 14, 2022A response icon1Nov 14, 2022A response icon1
PinnedThe Hidden Voices of Long Covid ProjectYou never think that something like this will happen to you, until it does.Jun 14, 2021A response icon3Jun 14, 2021A response icon3
PinnedI finally have a diagnosis for Long Covid and it’s shockingWhy a diagnosis took 11 months and 4 days to find and why it’s so medically bafflingMar 13, 2021A response icon27Mar 13, 2021A response icon27
Fourteen long covid updates…The last few months have been more long-covid-trauma-coasters but I made it through…Apr 29, 2022A response icon1Apr 29, 2022A response icon1
Thanks to long covid researchers, a venous oxygen saturation result is another piece of evidence…My venous oxygen saturation result is shockingly low, which supports the findings in long covid research…Mar 4, 2022A response icon1Mar 4, 2022A response icon1
A three part conversation with my mind, whilst I wait for test results…Why holding space for all thoughts helps me to create psychological flexibility for what I’m to be told…Feb 9, 2022Feb 9, 2022
I presented to the National Institute for Health Research as a patient advisor on the largest long…I shared my experience as a long hauler from the first wave, presented The Hidden Voices of Long Covid Project and what changed my recoveryDec 3, 2021A response icon3Dec 3, 2021A response icon3
Here’s what over 226 long haulers from my Instagram community said about their vaccine experienceA spontaneous instagram poll led to sharing lived experiences and surprising resultsOct 27, 2021Oct 27, 2021
“Are you getting the vaccine” is a question that I get asked every day.The answer is not yet — here’s why.Sep 29, 2021A response icon1Sep 29, 2021A response icon1
For the first time in seventeen months, I was able to exercise without long covid ‘fiery lungs’How an exercise test and a high dose of colchicine led to a long covid breakthroughSep 23, 2021Sep 23, 2021